We welcomed the Cystic Fibrosis Foundation and News Anchor, Ellen Bryan, into our home to give a bit of insight into what it's like living with Cystic Fibrosis. If you haven't seen it, Ellen did a fabulous job capturing lots of what we do in a short segment here:
https://www.ellenbryan.com/blog/the-delee-family-life-with-cystic-fibrosis
If you feel compelled by our story, please donate to add more tomorrows for my son, Fawkes here: Donate
Wednesday, August 23, 2017
Monday, August 21, 2017
Bracelets
We had a scare
Sunday night before the eclipse where Fawkes was coughing so uncontrollably and
wheezing so badly, we took him to the ER. We thought it might be our first
hospital exacerbation. Ultimately, they gave him an amped up Albuterol and sent
us on our way. We were there until about 4 am.
Needless to say, we were exhausted by the time we finally got home, so
we all stayed home the next day and Hudson made sure to get us special NASA
eclipse viewing glasses.
My mom found some
really pretty purple bracelets that represent the CF Foundation. Purple is
their color. So for anyone that donates over $100, you too can be the proud
owner of this sparkly bracelet! ***While supplies last*****
Subscribe to:
Posts (Atom)