Treatments and playtime

Over the years, Fawkes has been a trooper doing 2 mask treatments and 2 percussive vest treatments per day every day (even more when he's sick). All in all, it takes about 45 minutes each. So, what's a baby to do while he has to be confined for that long. We've set up a cool cart, from Ikea of course, that rolls around with him, but the stuff has to stay plugged in, so keeping him entertained has always been so important. Here are a few pictures of how we try to reward him for doing it.

We play with Bristle blocks.

We play with Legos.

We do Halloween arts and crafts. 

We play Nintendo switch and Mario Kart 8.

We play Mario while watching a youtube of someone playing Mario.

We give him cuddlees.

We do Easter stuff.

As you can see, mask and vest are integral to our lives throughout the year. I am always looking for ways to keep it fun. We always make sure to stay with him too so he doesn't feel alone while doing treatments. It's so, so important to keep it as positive as we can. Fawkes accepts them as a way of life now, but he is starting to ask questions on why he has to do vest and his friends don't. Right now, we just answer, that it's for him, but someday I'll have to tell him, "You have cystic fibrosis." That conversation hasn't happened yet.

If you find our story compelling, donate to the Cystic Fibrosis Foundation to add tomorrows for Fawkes and others:  Donate