Week 24

Well, we made it. This isn't the end, and it's sad for us. We had to turn in our meds. Fawkes will be off them until next Friday when we go back and start this whole thing over.

We left for Philly on Sunday night, stopped for dinner in Columbia, got to the hotel, did treatment, and went to bed. The next morning, while Fawkes was doing his treatment, I tried to squeeze in a little work because I have a huge review coming up, and people were waiting on me to send out the information. We left for the hospital after grabbing a quick breakfast at the hotel.

We did an LCI test (that one where he has to sit still for 5 minutes and not move with a mask on his mouth) a small and impossible feat for a 3 year old. I swear, people that want these tests have no idea how hard these set-ups are. Anyway, then it was to the optometrist to make sure the meds didn't effect his vision. I'm not sure why, but man that eye place in the hospital is busy. We had an appointment but it took TWO HOURS!!!  Luckily, I had my mommy bag of tricks and some sticker activities, Hudson got us snacks, and in the room they had Monsters Inc. Also, I had to get a urine sample while we waited which is always fun.

Then we did some other expected things, gave our stool sample to the nurse, did an EKG (Fawkes likes the stickers now), and the skateboarder breathing test.

We ate some lunch and then we had to do the dreaded sweat test. W e played Connect 4 while it was collecting the sweat which you can see in the picture on his arm. (You can learn more about this test on Screening and Day 1 posts).

We did the dreaded bloodwork, and he got his surprise which was Cootie. He saw it on his favorite You Tube, Ryan's Toys Review, and I loved that game as a kid, so I did what any mom would, ordered it off Amazon. He loves building the Cooties.

We'll be back to Philly next week for the safety follow-up.

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